Hope you’ll enjoy this mix of epilepsy-related news and comment.

We’ll try to keep you right up-to-date with the latest medication and treatment ideas, along with our thoughts on some of the bigger issues. When we get the latest news on Electricity – the book, the sequel and the film – we’ll post it here too.

Just one thing – if you have a comment or a question, or some thoughts of your own, please let us know. We’d love to hear from you…

Have you read Electricity yet?

A must for anyone interested in epilepsy as the main character, Lily O’Connor has the condition.

The author Ray Robinson contacted Sally in the early stages of writing and Sally shared her story for living with epilepsy with him.

Electricity – Ray Robinson

 » Read more about: Have you read Electricity yet?  »

Research into whether a Ketogenic diet can reduce seizures in adults with epilepsy. You can read the article here!

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National Epilepsy Awareness Week

We are supporting National Epilepsy Week by sharing the “Everyone Knows Someone campaign”.
1 in 100 people have epilepsy so please help us raise awareness this week, help us spread the word.

 » Read more about: National Epilepsy Awareness Week  »

Death again highlights urgent quality epilepsy training in the NHS

Connor Sparrowhawk’s tragic death again highlights the need for urgent need for epilepsy training where people with learning disability are being cared for.

The list of failings in the care of Connor Sparrowhawk makes for upsetting reading. Connor, who had autism, a learning disability and epilepsy, died on July 4, 2013 after being found unconscious in the bath on the Short Term Assessment and Treatment Team (STATT) unit at Slade House in Headington,

 » Read more about: Death again highlights urgent quality epilepsy training in the NHS  »

Epilepsy Society research is number one

Epilepsy Society’s research group – in collaboration with UCL Institute of Neurology and UCLH NHS Foundation Trust’s National Hospital of Neurology and Neurology – has been ranked as the world leading epilepsy group.


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Premature Deaths

As reported in the Daily Telegraph, a Swedish study, tracked 69,995 people with epilepsy born in Sweden between 1954 and 2009 over a 41 year period, and found that suicides and accidents accounted for almost 16% of all deaths in people with epilepsy.  Of these, three-quarters had also been diagnosed with a mental health condition such as depression. Suicides and accidents were the most common death not linked to the underlying condition.

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Anti-epilepsy drugs found to increase risk of autism

Researchers from Norway’s Haukeland University Hospital in Bergen found that by the age of three years old, children whose mothers had taken drugs to control their epileptic seizures were four times more likely to show traits associated with autism.  These children had a six per cent risk of developing autistic traits compared to 1.5 per cent risk in those youngsters who had not been exposed to the drugs while in the womb.

 » Read more about: Anti-epilepsy drugs found to increase risk of autism  »

Autism and Epilepsy

Research at the University of Bath has found a previously undiscovered link between epileptic seizures and signs of autism in adults.

Characteristics of autism, which include impairment in social interaction and communication as well as restricted and repetitive interests, can be severe and go unnoticed for many years, having tremendous impact on the lives of those who have them. The research found that epileptic seizures disrupt the neurological function which affects social functioning in the brain,

 » Read more about: Autism and Epilepsy  »

NICE Epilepsy Quality Standards

The National Institute for Health and Clinical Excellence (NICE) has published quality standards for the management and care of children, young people and adults with epilepsy, a central theme of which is improving diagnosis of the epilepsies.

The new quality standards contain a prioritised set of specific statements that, if delivered across the whole care pathway, should help boost the effectiveness, quality, safety and experience of care for people with epilepsy,

 » Read more about: March 2013  »